




First and update on Mia..
Mia










We had Mia's appointment with the nephrologist (kidney specialist) yesterday. At this point, there is no chance that there is nothing wrong. We just don't know what is wrong. Her U/S showed that her right kidney is too small and her left kidney is enlarged. Her blood is too acidic and she has too much potassium in her urine. This is why she's so small. The dr actually said she was more concerned by the height than the weight which means that whatever is wrong with her, may very well be wrong with Lily too. She said she wants to start simple and basic and work our way up. The first test will be a VCUG. They will catheterize her, put contrast into her bladder and see what happens. This is checking for reflux in the valve that connects the kidneys to the bladder. If this IS what is wrong, we will have to see how severe it is. If it's not bad a simple proceedure can fix it, if it's severe she'd need surgery. This is also very prevalant in siblings, so if she has it, we have to get lily tested. If this isn't what she has, we'll go to the next test. The thing with this is that generally a child with this disorder would have frequent UTI's and Mia has never had one. The dr said though that that doesn't mean she doesn't have this.So her test is sceduled for June 5th and we have our next appt with the nephrologist on June 13th.
I am doing my best to stay very positive. Freaking out will not help anything so i'm not going to do that... So on with that..
Both girls are doing amazingly. They are both walking running and trying to hop. They are very advanced in their speech. They are even saying a number of sentences. The funniest thing is that they have taken to calling Pete Pete. I'm still Mummy though. I wouldn't answer to Julie if they said it so it's a good thing.
They have finally gotten rid of the diarhia. It lasted 3 weeks. SO not fun
Anyways here are some recent pictures..
Mia





Lily





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