We had an appointment with the specialist last friday. The VCUG came back negative, so it's back to the drawing board. I informed the DR that my cousin had renal tubular acidosis and a child, so she is doing some additional tests for that, however she doubts she has it, and even if she does, that doesn't explain the discordance in her kidney sizes. We have scheduled another test on June 30th. This one will again require catheterization as well as an IV. After doing it once, i am dreading it even more because I know how bad it was last time, and this one will be longer.
We do however have an appointment for a second opinion on tuesday the 24th. We are seeing one of the top 10 pediatric nephrologists in the country. He is the head of ped nephrology at NY childrens hospital at Columbia presbyterian. We got SOO lucky getting this appointment. When I called for the 2nd time, after not getting a call back, the secretary said they had JUST had a new patient cancel, and she was supposed to call the waiting list but did we want the apointment! I of course jumped on it. So we will see what Dr. Nash has to say and go from there. I made sure to schedule the test for AFTER the apointment with him. In high hopes that i'll be able to cancel it! Mia did gain almost 2 lbs when we went last friday which is AWESOME! She's still way off the charts, but we are making progress.
In other news, Lily is an animal and a bully and she loves every second of it. when you tell her she's crazy she twirls her hand around her ear and sais "cucoo cucoo cucoo".. She's definitely my child. She even loves mushy broccoli. But I did almost have to disown her when she took a crap in the tub the other day and BLATENTLY said to me "No mummy, No poopy". 2 seconds later it came floating around her and we had to abandon ship. She'll be lucky if i ever give her a bath again.
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